I just wanted to share some great new information with all my Lupus warriors out there. Did you guys know that The Lupus Foundation of America in partnership with Inspire, has launched LupusConnect™ ? It’s an online Lupus community where individuals with Lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease.
LupusConnect encourages its community members to ask questions, reply to posts and read about others’ experiences in a safe and comforting community.
Research shows that Lupus patients and other autoimmune warriors are looking for social support and assistance coping with their disease. Specifically, they are looking for a resource where they can connect online with other people like them.
Based on this input and conversations with constituents, the Lupus Foundation of America partnered with Inspire to leverage its social health network and build an online community that brings together people affected by Lupus to share their stories and learn from the experiences of other people impacted by this devastating and life-altering disease.
“No matter how isolated Lupus can make people feel, LupusConnect offers people the opportunity to express their fears, frustrations, and hopes with others who understand Lupus firsthand,” said Sandra C. Raymond, Lupus Foundation of America CEO. “We are excited to partner with Inspire and to continue our commitment to providing people impacted by lupus with access to high-quality resources and support services.”
As people living with Lupus, we know first hand the difficulties we face and the benefit of connecting with others who genuinely feel our pain. Check out Lupus Connect. It’s free and it just might change your day.